Yup, I’m totally staring at the screen, not knowing what to write, what to say and/or how to say what feels like a big pile a mush in my head. Chronic Fatigue has my brain today and at some point, I’m hoping that it returns back. However, the reason I’m even typing a first post is because every blog as to start from somewhere – right? I feel like I’ve been blogging in my head for years, yet none of it is really written down. There’s so much I’ve wanted to say, have said & have even typed-up in the notes app on my phone, but just have never put it out there for the world to read. So..here I am. Blog Post #1. And considering that the current content on my blog is a bunch of live blog “ideas,” used to help me design the layout, I probably should begin posting content that will hopefully be relevant, informative & motivating to those who read it.
My hope is that my website becomes so much more than just a virtual record of my daily thoughts for the world to read (and that’s assmuing the “world” will have interest in and will want to read what I have to say) and is instead, viewed as a resource for anyone seeking specific information on the topics that can be found here and/or who is looking for place to read something fun, uplifting and motivating.
Most importantly, I never want anyone living with EDS (Ehlers-Danlos Syndrome) and/or any of the other shebang of chronic illnesses that I’ve been blessed with, to feel alone, lack hope and feel that all that they read, see and hear is sad and negative. Needless to say, I am more than excited to finally be putting together what feels like I’ve been doing all along, just not offically.
Call me naive, but I truly feel that there is a way for each one of us to live as healthy & strong as possible, while living with one or more chronic and/or invisible illnesses, such as Ehlers-Danlos Syndrome. My way may not work for you, your mom, your friend, your dog or anyone else that you know, but I did find what works for me (for now, considering my journey is always evolving and never really ends) and so have countless others. We all come from different backgrounds and face differnt struggles, obstacles, absolute roadblocks, financial constraints (or lack there of), severity of our illness(es) and so on, but I know that there is a way for each one of us to find our “happy & healthy” place, while living with whatever deck of cards we’ve been dealt. However, finding our own “happy & healthy place” (whatever that looks like for each of us) can be done, but it requires drive, committment, consistency, a ton of self-motivation and the willingness to face the main person responsible for our personal attitudes, beleifs and excuses……the person we face in the mirror each day.
So, cheers to embarking on this next chapter of life with me and if you have already been following my journey through one of my social media accounts (which is why you are here now, on my website and reading this blog post), thank you for being part of my story thus far. The messages, emails, feedback and comments that I’ve recieved over the last few years, was the push that I needed to take what I’ve always been doing, just one step further.
Horrayyy for finding strength & health, while being “too flexible” and living with EDS.