On June 18th, 2015, I gave my first Moving Naturally with Hypermobility Seminar. This seminar was put together as a partnership between myself and 2 local DPTs, Chris Gnip and Victor Chang. Chris is someone I’ve personally been working with, after trying to find a PT who really did understand EDS and how to work with Hypermobile patients. To my surprise, Chris did get it and he’d actually been working with Dr. Pocinki to learn more. Chris had the idea of putting together seminars for both patients and healthcare practitioners and he asked that both Victor and I participate. Because both Victor and Chris are hypermobile themselves and recognize the shortcomings of most traditional physical therapy approaches for patients with hypermobility syndromes, they are both passionate about helping patients with all types of Ehlers-Danlos Syndromes.
Overall, it was clear that seminars like the one we put together are greatly needed. However, our seminar went a bit long, we were not sure of the level of general knowledge of those who came, or who had even been diagnosed with Ehlers-Danlos Syndrome. Pretty typical growing pains for a new endevour. Each person had some level interest in movement and hypermobility, but what each person was expecting to learn or gain was also unknown to us. First, it was imperative to give an overview on Hypermobility Syndrome and how that related to Ehlers-Danlos Hypermobility Type — that’s a lot to digest for someone new, or can be repetitive for those already diagnosed.
Chris covered the basics of EDS with a few side bars from me, Victor covered how to approach daily activity & physiotherapy when you are hypermobile and I wrapped it all together with additional information, some of the latest research and resources. Feedback afterwards was great. All three of us have all already started working with various patients who attended our seminar and we will be planning more in the future. Our plan is to break each seminar down into different areas of interest associated with physical therapy and overall knowledge on EDS and expand from there.
We met some incredible people and appreciate everyone who came out to our first seminar. All three of our presentations are linked below. Any questions can be emailed to me: email@example.com.
To stay updated on future seminars and find additional PT and exercise resources, you can visit our website: www.movingnaturallywithhypermobility.com. I will make seminar announcements on this website as well.
Chris’s Presentation – Moving with Hypermobility
Victor’s Presentation – Moving Naturally with Hypermobility copy
Kendra’s presentation – Moving Naturally with Hypermobility 2015 June Pres
Disclaimer: The presentations are for information purposes only and may not be fit for all persons with Ehlers-Danlos Syndrome or Hypermobility Syndrome. These are to provide general information and are not to be viewed as directive. You should always speak with your healthcare provider before beginning a new exercise regimen.
Strength/Flexibility/Health/EDS is a health education, coaching and lifestyle website and blog about living with Ehlers-Danlos Syndrome. Strength/Flexibility/Health/EDS is a subsidiary of EDS Patient Solutions, LLC. I am not a physician; Therefore, I do not offer help with medical diagnosis, give medical treatment plans and/or endorse specific physicians outside of providing names of known physicians who diagnose and treat EDS. It is important to realize that the information provided by SFHEDS (Kendra Neilsen Myles), EDS Patient Solutions, related social media sites and affiliates, is not meant as a replacement for proper care from a doctor, therapist, or other health care providers. You are solely responsible for researching physicians, treatment options & resources that best fit your specific EDS case, as well as for your overall health & well-being. It is vital that you talk with your health care providers concerning the diagnosis and treatment options for Ehlers-Danlos Syndrome and related connective tissue disorders. By requesting health education, exercise and other information and/or counseling or coaching pertaining to Ehlers-Danlos Syndrome, another chronic health condition or your overall health and well-being in general, you understand and agree that Strength/Flexibility/Health/EDS or Kendra Neilsen Myles, as well as EDS Patient Solutions, LLC, are not responsible for a providers’ services or lack thereof, treatment & therapies that do not work, injuries or issues associated with exercises or certain workouts posted, as well as any discussions that you may have with individuals that are affiliates of EDS Patient Solutions, such as Our SOS Media, LLC and its subsidiaries, such as Strength/Flexibility/Health/EDS.
Strength/Flexibility/Health/EDS website and blog, discusses and shares various reputable articles on health, fitness, nutrition and wellness, as well as medical information on various chronic illnesses, including Ehlers-Danlos Syndrome. The personal information and stories shared by Kendra Neilsen Myles are for information only and are not to be mistaken for medical advice or taken as a directive. Other content shared is for information purposes only and content discussed, written or posted on this site is not the opinion of Strength/Flexibility/Health/EDS, its owner, EDS Patient Solutions, LLC or its affiliates. By using or sharing any information presented, you a agree that Strength/Flexibility/Health/EDS (Kendra Neilsen Myles) and EDS Patient Solutions, LLC, Chris Gnip, DPT & Victor Chang, DPT are not liable for the content and opinions of expressed on this site.