Wednesday, March 15th, 2017 is the day that the highly anticipated newly updated EDS diagnostic criteria will be released. The Ehlers-Danlos Society is holding a webinar in the morning at 9:30 am; however, it’s reached capacity. I will be listening in along with everyone else on the webinar. I was also graciously asked to help moderate a live Q&A session in the EDS Life Hacks group on Facebook at 4 pm EST on Wednesday afternoon. Our regularly scheduled “Just 5 Minutes” class will be held at 2:30 pm EST and then I will be live via video stream in...Read More
“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “ I’ve written before about how much I loathe long car rides, and how much sitting too long can often flare chronic pain — specifically, leg pain for me. If you aren’t familiar with my “car yoga”-while-on-a-long-car-ride-because-of-chronic-pain story, you can go here to read it. I’ve also written about how sitting too long can cause your butt to...Read More
Meditative Mind – Meditation Music – one of our favorite channels on YouTube. They just released a new music video called ‘528Hz | Repairs DNA & Brings Positive Transformation | Solfeggio Sleep Music’. What we love is that the Meditative Mind Meditation Music channel of a variety of meditation and relaxation-type music, and each video play for 8+/- hours – all free! YouTube has several other channels that offer similar playlists and music videos; however, the Strength/Flexibility/Health/EDS adds our favorites into a few different categories of playlists through our YouTube channel as well – see links below. Music – Sleep & Meditation (Long) Nature...Read More
CRPS sometimes occurs comorbidly in those with EDS, and often “spreads” through the body. The pain can be debilitating and crippling, caused by intense burning, pins and needles and other nerve or”shock” like pain. CRPS is also known as RSD and is considered “Neuro-Inflammatory Disorder” – a condition that involves dysfunction of the nervous system and the immune system. It’s described as a condition that “occurs when the nervous system and the immune system malfunction as they respond to tissue damage from trauma. The nerves misfire, sending constant pain signals to the brain. The level of pain is measured...Read More
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Integrative Wellness Retreats: Wellapalooza
Move More. Move Better.: Moving Naturally with Hypermobility
(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]
Yoga for Hypermobility : The Hypermobile Yogi
Mast Cell Research: Mast Cell Research
What a way to celebrate the 1 year anniversary of the publishing of ‘Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity’ (2016, Sisters Media, LLC) that by sharing some of the recent reviews! “Five Stars – So so so great for anybody dealing with Mast […]