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Author: Strength/Flexibility/Health/EDS

Chronic Fatigue Syndrome – finally being recognized as a true medical condition & it’s getting a new name

I first learned about Chronic Fatigue Syndrome in 8th grade, when my boyfriend’s mom owned a popular local fitness program and she also suffered from Chronic Fatigue Syndrome.  I remember that it was a condition not widely understood and it was a huge deal with there was a write-up in our local paper about her and about Chronic Fatigue Syndrome.  All I can remember was thinking, “This is me. This is what I’ve been dealing with my whole life.”  Yes, I was all of 12/13 years old at the time, but I’ve been chronically tired my whole life. For real....

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Proper neck alignment during acitvity and exercise

Proper neck aligment during activity and exercise is essential for anyone, but especially important for those of us with Ehlers-Danlos Syndrome.  There are many of individuals with EDS, who have longer necks and due to the laxity of our connective tissues,  also suffer from CranioCervical Instability (or CCI).  Therefore, learning proper neck alignment, techniques and exercises to help keep our necks as strong as possible, are essential to our overall health and especially importnat for those of EDS. Here’s an example of how proper neck alignment can easily be overlooked: #EDSFitTip – position of your neck is so important...

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Functional Exercises for EDS

#EDSFitTip – Try focusing on exercises that can work your whole body or what are sometimes called functional exercises. These exercises work the whole body, help with the overall stability of our bodies & help us move with more ease through daily life. This lunge exercise helps strengthen the feet, ankles, legs, core & upper body. However, this variation is a more challenging exercise when done on the foam roller. To modify, either focus on balancing on the foam roller only or performing the lunge on the floor with or without arms. Here’s what to do: 1. Position your...

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Exercise is Medicine

As someone who has been an exercise & health fanatic my whole life, I love seeing people find ways to incorporate proper exercise and nutrition into their daily lives.  Of course, I do realize that there is not a “one side fits all” approach and everyone has to find what works for them.  However, regular exercise really is life-changing from all aspects – physical, emotional, mental and even spiritual.  And once it becomes a habit, it’s a habit that you can’t give-up.  It’s routine, much like brushing your teeth and then you find  ways to be as healthy as...

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“Our Stories of Strength – Living with EDS” – an anthology of stories of those with Ehlers-Danlos Syndrome

In addition to putting this website/blog together (finally), I’ve been working with a good friend on a very special project called, “Our Stories of Strength – Living with EDS.”  Our Stories of Strength- Living with EDS is an anthology of stories of those who have Ehlers-Danlos Syndrome and who have found ways to persevere.   Both Mysti and I couldn’t be more excited and passionate about bringing “good news” stories to the EDS community, as well as to help give so many people a voice.  Recently, we opened-up for submissions of stories from those who are living with POTS...

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Move More. Move Better.: Moving Naturally with Hypermobility

#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

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Mast Cell Research: Mast Cell Research

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

Thank you to everyone who participated in the Mast Cell Research ‘Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!’ We are excited to announce that our winner, chosen at random, is Karen Smith- Will! Karen’s story ‘Twenty Minutes’ is shared below. “I coughed before the first song. That doesn’t bode well. Not surprising, but […]