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Category: Am Reading

‘Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorders’ (2017) by Clair Smith of HMSA

‘Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorders’ (2017) written by Claire Smith, Publications Editor & Partnership Director at The Hypermobility Syndromes Association (HMSA), based in the United Kingdom. Claire worked on this incredible resource for several years, nearly completing it just before the International Consortium began working on updated Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) criteria — published March 2017. Obviously, she did not want to publish a new book with obsolete information, especially considering the intent was for this incredible resource to be as up-to-date as possible. Hence, Claire waited to publish ‘Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility...

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The Patient’s Playbook – A Handbook to Navigating the US Healthcare System

“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “   At first, I was a bit skeptical. I wondered if the information and examples provided in The Patient’s Playbook would resonate with my first-hand experience as a patient. I also wondered if the suggestions provided would fall in line to what I’ve witnessed professionally from working in both the pharmaceutical and medical fields for the last...

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“Our Stories of Strength – Living with EDS” – an anthology of stories of those with Ehlers-Danlos Syndrome

In addition to putting this website/blog together (finally), I’ve been working with a good friend on a very special project called, “Our Stories of Strength – Living with EDS.”  Our Stories of Strength- Living with EDS is an anthology of stories of those who have Ehlers-Danlos Syndrome and who have found ways to persevere.   Both Mysti and I couldn’t be more excited and passionate about bringing “good news” stories to the EDS community, as well as to help give so many people a voice.  Recently, we opened-up for submissions of stories from those who are living with POTS...

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Move More. Move Better.: Moving Naturally with Hypermobility

#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

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Mast Cell Research: Mast Cell Research

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

Thank you to everyone who participated in the Mast Cell Research ‘Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!’ We are excited to announce that our winner, chosen at random, is Karen Smith- Will! Karen’s story ‘Twenty Minutes’ is shared below. “I coughed before the first song. That doesn’t bode well. Not surprising, but […]