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Category: Charity/Fundraising

The 2nd Annual EDS Ride for a Cause is on December 4th, 2016!

Registration is live for the EDS Ride for a Cause at Zengo Cycle Bethesda, MD! To sign up, see link below. You first buy your “EDS Wellness” charity ride series, and then book your bike seat in the class.  Want to donate directly to EDS Wellness instead?  All donations are tax deductible!  Go to – https://www.paypal.me/EDSWellness Registration link – http://www.zengocycle.com/reserve/index.cfm?action=Workshop.events#events24438  Link to Facebook event page –...

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What is POTS? — Understanding the Importance of Dysautonomia Awareness Month

POTS is a type of Dysautonomia or Autonomic Dysfunction. It’s estimated that 1/3 of patients with POTS have EDS. Both POTS and Dysautonomia are comorbid with Mast Cell Activation Syndrome (MCAS), Amyloidosis, Sarcoidosis, Diabetes (Type 1 & 2), Ehlers-Danlos syndrome, deconditioning and more. There seems to be an underlying link especially for those of us who have these several of these conditions in our families — which is why awareness and proper diagnosis is critical. October is Dysautonomia awareness month, and today, there’s a charity ride at Zengo Cycle in Bethesda benefiting Dysautonomia International – one of my favorite...

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Charity Ride for Dysautonomia International and why it’s so important

Charity Ride for Dysautonomia International and why it’s so important For my Bethesda (or Maryland) friends and family, there’s a charity ride on Oct. 11th at Zengo Cycle for Dysautonomia International – a sister charity to EDNF, because conditions overlap so much. To sign-up, go to: www.zengocycle.com. You first have to purchase the charity ride series and then book the class   What is Dysautonomia? “Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the “automatic” functions of the body that we...

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2nd Annual EDS Ride for a Cause on May 30th, 2015, benefitting The Ehlers-Danlos National Foundation

2nd Annual EDS Ride for A Cause on May 30th, 2015 Save the Date! Last year’s #rideforacause at Zengo Cycle in Bethesda, MD was a great success, so we are doing it again and making it even better this year! (See link below for pictures & details from last year’s #rideforacause). Join us for a great event raising awareness for Ehlers-Danlos Syndrome (EDS), just as we wrap-up National EDS Awareness Month in May! More details will be announced, as I work them out, but please “Save the Date!” The plan is to expand on our successful charity ride at Zengo and...

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Move More. Move Better.: Moving Naturally with Hypermobility

#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

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Mast Cell Research: Mast Cell Research

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

Thank you to everyone who participated in the Mast Cell Research ‘Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!’ We are excited to announce that our winner, chosen at random, is Karen Smith- Will! Karen’s story ‘Twenty Minutes’ is shared below. “I coughed before the first song. That doesn’t bode well. Not surprising, but […]