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Category: Comorbid EDS Conditions

Migraines, Ehlers-Danlos syndrome (EDS), Mast Cell Activation Syndrome (MCAS), Birth Control Pills, and Light Sensitivity 

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. I’ve suffered from chronic headaches my whole life — including migraines. My first experience with migraines was watching my mom try to cope in any way that she could with the horrid headaches she would often get. These headaches left her sick to her stomach and in bed, unless she had closed herself in the bathroom or...

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What is POTS? — Understanding the Importance of Dysautonomia Awareness Month

POTS is a type of Dysautonomia or Autonomic Dysfunction. It’s estimated that 1/3 of patients with POTS have EDS. Both POTS and Dysautonomia are comorbid with Mast Cell Activation Syndrome (MCAS), Amyloidosis, Sarcoidosis, Diabetes (Type 1 & 2), Ehlers-Danlos syndrome, deconditioning and more. There seems to be an underlying link especially for those of us who have these several of these conditions in our families — which is why awareness and proper diagnosis is critical. October is Dysautonomia awareness month, and today, there’s a charity ride at Zengo Cycle in Bethesda benefiting Dysautonomia International – one of my favorite...

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Mast Cells, Ehlers-Danlos syndrome, and GI Disorders

  “We’ve changed our living environment…If it was cold you put on a sweater; you didn’t turn up the heat to 72º. The foods that we eat are no longer locally raised. So…this mast cell that’s used to a certain type of micro-environment is just completely confused and now completely over-active.” — Anne Maitland, MD, Ph.D., Allergy & Immunology (via MastCellAware.com) Ever wonder how and why ‎mast cell dysfunction seems to be so prevalent and overlapping with Ehlers-Danlos syndrome (EDS)? Mast Cells, Ehlers-Danlos syndrome, and GI Disorders appear to all go hand-in-hand as well. This image below should be...

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“Let’s talk about sex baby, let’s talk about you and me …”- How you can be allergic to semen and how it relates to Mast Cell Activation Syndrome (MCAS) and Ehlers-Danlos Syndrome (EDS)

“Let’s talk about sex baby, let’s talk about you and me. Let’s talk about all the good things and the bad things that may be…..” Let’s also talk about how you can be allergic to semen – The Human Seminal Protein Allergy (HSPA) and how it relates to Mast Cell Activation Syndrome (MCAS) and Ehlers-Danlos Syndrome (EDS) Did you know that you can be allergic to semen? The actual medical term is called “The Human Seminal Protein Allergy,” or HSPA for short – and it’s far from rare. In fact, my guess is that it’s even more common than current...

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Move More. Move Better.: Moving Naturally with Hypermobility

#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

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Mast Cell Research: Mast Cell Research

Dr. Lawrence Afrin’s Mast Cell Activation Disorder Presentation Slides – Wellapalooza 2017

Dr. Lawrence Afrin’s Mast Cell Activation Disorder Presentation Slides – Wellapalooza 2017

Dr. Afrin’s presentation slides on Mast Cell Activation Disorder (MCAD) from Wellapalooza 2017, are posted publicly with permission. If referring to this presentation or using to source in information, please source correctly by providing the following link http://mastcellresearch.com/wp-content/uploads/2017/06/MCAD-Overview-2017-Wellapalooza-General.pptx Questions pertaining to this slide presentation can be sent to info@wellapalooza.com. If you would like to reach out to […]