Category: EDS Resources
Download the EDS Wellness App today! Who is EDS Wellness? EDS Wellness is a 501(c)(3) nonprofit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), connective tissue diseases, and related comorbidities. 1. The EDS Wellness HelpLine is live! You can schedule 15-minute phone appointments, or send an email to firstname.lastname@example.org Direct link to HelpLine appointment scheduling – http://edswellness.org/index.php/make-an-appointment/ See original post announcing the EDS Wellness HelpLine by going to http://edswellness.org/index.php/2016/10/16/eds-wellness-helpline-live-download-eds-wellness-app-make-appointment-register-classes-seminars-conferences/ 2. EDS Wellness has an App! Now available through iTunes or Google Play! Link to EDS Wellness...Read More
The Integrative Healing Brochure for Ehlers-Danlos syndrome (EDS) was a year-long collaborative project between Kendra Neilsen Myles, EDS Wellness, Dr. Clair Francomano, Charles Thorpe, Emily Telfair, N.D., and included the help of a professional editor and graphic designer. If you are interested in downloading or printing the brochure yourself, please send an email to Kendra@EDSWellness.org, or submit a request through the contact form below. This brochure is copyright protected and may not be republished, printed, or distributed without permission. All rights reserved. The final brochure PDF has been uploaded here, as well as on Wellapalooza’s website, and to EDS Wellness.org....Read More
Wellapalooza 2016 is in less than two weeks! June 10th-12th, 2016 We’ve had an influx of registrations over the last day and spaces are limited. If you would like to attend Wellapalooza 2016, or know someone else who may be interested, please make sure that registration is complete by Friday, June 3rd! Additionally, we are also holding a Physicians Learning Lunch in conjunction with Wellapalooza 2016. The Physicians Learning Lunch is on Sunday, July 12th, 2016 at Turf Valley Resort in Ellicott City, MD. Dr. Afrin’s generously agreed to stay for all three days of Wellapalooza 2016. There are ample...Read More
Living with Chronic Pain – Tips and Resources for Managing Pain Associated with Ehlers-Danlos Syndrome (EDS) Pain…just the thought causes me to start breathing deep, my shoulders tighten and I can feel a headache wanting to break through. Talk about a full on psychological/physiological response to just the thought of pain because I am writing about it in a blog post. Pain and chronic pain has been a part of my life since I was a kid. And managing chronic pain associated with EDS has become my profession. I can remember crying in the middle of the night asking...Read More
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Integrative Wellness Retreats: Wellapalooza
Move More. Move Better.: Moving Naturally with Hypermobility
(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]
Yoga for Hypermobility : The Hypermobile Yogi
Mast Cell Research: Mast Cell Research
What a way to celebrate the 1 year anniversary of the publishing of ‘Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity’ (2016, Sisters Media, LLC) that by sharing some of the recent reviews! “Five Stars – So so so great for anybody dealing with Mast […]