“We’ve changed our living environment…If it was cold you put on a sweater; you didn’t turn up the heat to 72º. The foods that we eat are no longer locally raised. So…this mast cell that’s used to a certain type of micro-environment is just completely confused and now completely over-active.” — Anne Maitland, MD, Ph.D., Allergy & Immunology (via MastCellAware.com) Ever wonder how and why mast cell dysfunction seems to be so prevalent and overlapping with Ehlers-Danlos syndrome (EDS)? Mast Cells, Ehlers-Danlos syndrome, and GI Disorders appear to all go hand-in-hand as well. This image below should be...Read More
“When you hear the sound of hooves, think horses, not zebras.” This is a phrase that is referred to often when medical students are in medical school and the term “zebra” is used in reference to a rare disease or condition. Doctors are taught to expect common conditions, versus incorrectly diagnosing patients with rare conditions. However, we know that “Zebras” DO exist. And because of this, obtaining a proper diagnosis and treatment can be more difficult when the condition you have is considered rare, yet in truth is rarely diagnosed, patients are often misdiagnosed. The identity associated with a...Read More
(***Please note – the information contained in this post is being updated according to the current 2017 EDS Diagnostic Criteria. We will republish this post once it’s been rewritten and updated. To learn more about the 2017 EDS Diagnostic Criteria and Hypermobility Spectrum Disorders (HSD), please visit ‘Understanding the 2017 Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Diagnostic Criteria – Helpful Resources and Links’***) Once you have received an EDS diagnosis or even if you think you may have EDS, many people will ask “What is Ehlers-Danlos syndrome?” Having knowledge on what EDS is and how it many...Read More
What does Ehlers-Danlos Syndrome look like under a microscope? Do you ever wonder what Ehlers-Danlos Syndrome or having “issues in your tissues,” actually looks like compared to normal connective tissue? Maybe you wonder if the different types of EDS look the same under a microscope, or does each type really look different? If the each type of EDS does look different up close, what makes the things look different? Does it comes down to the type of connective tissue that is affected, or where that connective tissue is in your body? Yes, yes and all of the time…. that’s my answer...Read More
Summary of the latest information and treatment approaches for Ehlers-Danlos Syndrome Hypermobility Type
Summary of the latest information and treatment approaches for Ehlers-Danlos Syndrome Hypermobility Type (Repost of Beating Limitations summary on EDS UK’s “Managing your EDS” One Day Conference on May 9th) One of other admins for the EDS Athletes group on Facebook that I help oversee is Donna. Donna writes for a blog called Beating Limitations, which exactly that — posts about Donna’s life and how she is beating the limitations of living Ehlers-Danlos Syndrome and CMT (Charot-Marie-Tooth Disease). Donna was born in the U.S. and is now married, lives in London with her husband and pup Felix. Recently, Donna attended the...Read More
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Integrative Wellness Retreats: Wellapalooza
Move More. Move Better.: Moving Naturally with Hypermobility
(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]
Yoga for Hypermobility : The Hypermobile Yogi
Mast Cell Research: Mast Cell Research
What a way to celebrate the 1 year anniversary of the publishing of ‘Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity’ (2016, Sisters Media, LLC) that by sharing some of the recent reviews! “Five Stars – So so so great for anybody dealing with Mast […]