Wednesday, March 15th, 2017 is the day that the highly anticipated newly updated EDS diagnostic criteria will be released. The Ehlers-Danlos Society is holding a webinar in the morning at 9:30 am; however, it’s reached capacity. I will be listening in along with everyone else on the webinar. I was also graciously asked to help moderate a live Q&A session in the EDS Life Hacks group on Facebook at 4 pm EST on Wednesday afternoon. Our regularly scheduled “Just 5 Minutes” class will be held at 2:30 pm EST and then I will be live via video stream in...Read More
Registration is live for the EDS Ride for a Cause at Zengo Cycle Bethesda, MD! To sign up, see link below. You first buy your “EDS Wellness” charity ride series, and then book your bike seat in the class. Want to donate directly to EDS Wellness instead? All donations are tax deductible! Go to – https://www.paypal.me/EDSWellness Registration link – http://www.zengocycle.com/reserve/index.cfm?action=Workshop.events#events24438 Link to Facebook event page –...Read More
Mind-Body Strategies for Hypermobility and Chronic Pain This 4 class/seminar series on Mind-Body Strategies for hypermobility and chronic pain, and is a collaboration between EDS Wellness and Dr. Deborah Norris with The Mindfulness Center in Bethesda, MD. The purpose of this series of 4 classes is based on two principles: 1. Part of the RYS 200 Yoga Instructor Training Program is a Seva requirement. Seva is a series of 4 yoga classes taught to a particular community – free of charge. It’s the community service requirement of the RYS 200 certification. Kendra Neilsen Myles of EDS Wellness picked the...Read More
Download the EDS Wellness App today! Who is EDS Wellness? EDS Wellness is a 501(c)(3) nonprofit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), connective tissue diseases, and related comorbidities. 1. The EDS Wellness HelpLine is live! You can schedule 15-minute phone appointments, or send an email to email@example.com Direct link to HelpLine appointment scheduling – http://edswellness.org/index.php/make-an-appointment/ See original post announcing the EDS Wellness HelpLine by going to http://edswellness.org/index.php/2016/10/16/eds-wellness-helpline-live-download-eds-wellness-app-make-appointment-register-classes-seminars-conferences/ 2. EDS Wellness has an App! Now available through iTunes or Google Play! Link to EDS Wellness...Read More
POTS is a type of Dysautonomia or Autonomic Dysfunction. It’s estimated that 1/3 of patients with POTS have EDS. Both POTS and Dysautonomia are comorbid with Mast Cell Activation Syndrome (MCAS), Amyloidosis, Sarcoidosis, Diabetes (Type 1 & 2), Ehlers-Danlos syndrome, deconditioning and more. There seems to be an underlying link especially for those of us who have these several of these conditions in our families — which is why awareness and proper diagnosis is critical. October is Dysautonomia awareness month, and today, there’s a charity ride at Zengo Cycle in Bethesda benefiting Dysautonomia International – one of my favorite...Read More
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Integrative Wellness Retreats: Wellapalooza
Move More. Move Better.: Moving Naturally with Hypermobility
(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]
Yoga for Hypermobility : The Hypermobile Yogi
Mast Cell Research: Mast Cell Research
What a way to celebrate the 1 year anniversary of the publishing of ‘Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity’ (2016, Sisters Media, LLC) that by sharing some of the recent reviews! “Five Stars – So so so great for anybody dealing with Mast […]