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Category: Events

Wednesday is a big day! The 2017 EDS Diagnostic Criteria will be Published!

Wednesday, March 15th, 2017 is the day that the highly anticipated newly updated EDS diagnostic criteria will be released. The Ehlers-Danlos Society is holding a webinar in the morning at 9:30 am; however, it’s reached capacity. I will be listening in along with everyone else on the webinar. I was also graciously asked to help moderate a live Q&A session in the EDS Life Hacks group on Facebook at 4 pm EST on Wednesday afternoon. Our regularly scheduled “Just 5 Minutes” class will be held at 2:30 pm EST and then I will be live via video stream in...

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The 2nd Annual EDS Ride for a Cause is on December 4th, 2016!

Registration is live for the EDS Ride for a Cause at Zengo Cycle Bethesda, MD! To sign up, see link below. You first buy your “EDS Wellness” charity ride series, and then book your bike seat in the class.  Want to donate directly to EDS Wellness instead?  All donations are tax deductible!  Go to – https://www.paypal.me/EDSWellness Registration link – http://www.zengocycle.com/reserve/index.cfm?action=Workshop.events#events24438  Link to Facebook event page –...

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EDS Mind-Body Wellness Seminars – Register Now!

Mind-Body Strategies for Hypermobility and Chronic Pain This 4 class/seminar series on Mind-Body Strategies for hypermobility and chronic pain, and is a collaboration between EDS Wellness and Dr. Deborah Norris with The Mindfulness Center in Bethesda, MD. The purpose of this series of 4 classes is based on two principles: 1. Part of the RYS 200 Yoga Instructor Training Program is a Seva requirement. Seva is a series of 4 yoga classes taught to a particular community – free of charge. It’s the community service requirement of the RYS 200 certification. Kendra Neilsen Myles of EDS Wellness picked the...

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EDS Wellness’ HelpLine is Live and Open for Appointments and Emails!

Download the EDS Wellness App today! Who is EDS Wellness? EDS Wellness is a 501(c)(3) nonprofit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), connective tissue diseases, and related comorbidities.   1. The EDS Wellness HelpLine is live! You can schedule 15-minute phone appointments, or send an email to helpline@edswellness.org Direct link to HelpLine appointment scheduling – http://edswellness.org/index.php/make-an-appointment/ See original post announcing the EDS Wellness HelpLine by going to  http://edswellness.org/index.php/2016/10/16/eds-wellness-helpline-live-download-eds-wellness-app-make-appointment-register-classes-seminars-conferences/ 2. EDS Wellness has an App! Now available through iTunes or Google Play! Link to EDS Wellness...

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What is POTS? — Understanding the Importance of Dysautonomia Awareness Month

POTS is a type of Dysautonomia or Autonomic Dysfunction. It’s estimated that 1/3 of patients with POTS have EDS. Both POTS and Dysautonomia are comorbid with Mast Cell Activation Syndrome (MCAS), Amyloidosis, Sarcoidosis, Diabetes (Type 1 & 2), Ehlers-Danlos syndrome, deconditioning and more. There seems to be an underlying link especially for those of us who have these several of these conditions in our families — which is why awareness and proper diagnosis is critical. October is Dysautonomia awareness month, and today, there’s a charity ride at Zengo Cycle in Bethesda benefiting Dysautonomia International – one of my favorite...

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Integrative Wellness Retreats: Wellapalooza

EDS Wellness/Wellapalooza Update & Important Information!

EDS Wellness/Wellapalooza Update & Important Information!

#Wellapalooza2017 Prep – T Minus Just Under 2 Days!

#Wellapalooza2017 Prep – T Minus Just Under 2 Days!

Wellapalooza 2017 – and this doesn’t even include the stuff Ashton has, the AV/IT equipment, and the big big stuff that I am having shipped to the Salamander Resort […]

Move More. Move Better.: Moving Naturally with Hypermobility

#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

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Mast Cell Research: Mast Cell Research

This is me! – 125 Five Star Reviews!

This is me! – 125 Five Star Reviews!

“This is me! – I have heard it for most of my 50 years. “You are puny.” “Why can’t you ever pass up a virus or “bug”?” “It is impossible to be allergic to that! No one is allergic to that!” “You just need to eat better and exercise!” Wrong. Wrong. Wrong. God Bless Dr. […]