CRPS sometimes occurs comorbidly in those with EDS, and often “spreads” through the body. The pain can be debilitating and crippling, caused by intense burning, pins and needles and other nerve or”shock” like pain. CRPS is also known as RSD and is considered “Neuro-Inflammatory Disorder” – a condition that involves dysfunction of the nervous system and the immune system. It’s described as a condition that “occurs when the nervous system and the immune system malfunction as they respond to tissue damage from trauma. The nerves misfire, sending constant pain signals to the brain. The level of pain is measured...Read More
“This is a sponsored post. I have been compensated through the Chronic Illness Bloggers network. All opinions remain my own, and I was in no way influenced by the company.” “Silver Healer produces a nano-particle blend of ionic and colloidal silver that can be easily absorbed by the body. It is one of the most powerful natural antibiotics in existence.” – Honey Colony Silver is considered one of the best natural antibiotics/antimicrobial products available. It’s been used for thousands of years and in various cultures for its antibiotic properties. The use of silver in the medical and health field...Read More
(***Please note – the information contained in this post is being updated according to the current 2017 EDS Diagnostic Criteria. We will republish this post once it’s been rewritten and updated. To learn more about the 2017 EDS Diagnostic Criteria and Hypermobility Spectrum Disorders (HSD), please visit ‘Understanding the 2017 Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Diagnostic Criteria – Helpful Resources and Links’***) Once you have received an EDS diagnosis or even if you think you may have EDS, many people will ask “What is Ehlers-Danlos syndrome?” Having knowledge on what EDS is and how it many...Read More
What does Ehlers-Danlos Syndrome look like under a microscope? Do you ever wonder what Ehlers-Danlos Syndrome or having “issues in your tissues,” actually looks like compared to normal connective tissue? Maybe you wonder if the different types of EDS look the same under a microscope, or does each type really look different? If the each type of EDS does look different up close, what makes the things look different? Does it comes down to the type of connective tissue that is affected, or where that connective tissue is in your body? Yes, yes and all of the time…. that’s my answer...Read More
My butt is flat! Why sitting too much causes chronic pain, muscle atrophy and problems moving around.
My butt is flat! Why sitting too much causes chronic pain, muscle atrophy and problems moving around. This post is reposted from last spring and added to, because it’s one of the most searched topics on my site. I figured posting it again and including additional information and resources may be helpful. My butt is flat. I swear on my life, it’s gotten flatter today from sitting in this darn chair and working at my computer. People think that I’m exaggerating when I talk about this issue, but I’m not. Really, I’m not. My butt seriously gets flatter the...Read More
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Integrative Wellness Retreats: Wellapalooza
Move More. Move Better.: Moving Naturally with Hypermobility
(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]
Yoga for Hypermobility : The Hypermobile Yogi
- Gentle Hatha Flow Yoga for Hypermobility and Chronic Pain with Kendra Neilsen Myles of EDS Wellness
- Practicing Yoga Safely with Hypermobility
- Mind-Body Strategies for Hypermobility with Chronic Pain Class at The Mindfulness Center with EDS Wellness
- Dr. Alan Pocinki’s Presentation at the EDS DC Support Group Meeting (March 2017)
- #EDSFitTip – Standing leg exercises for Hypermobility and Dysautonomia or POTS
Mast Cell Research: Mast Cell Research
‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!
Thank you to everyone who participated in the Mast Cell Research ‘Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!’ We are excited to announce that our winner, chosen at random, is Karen Smith- Will! Karen’s story ‘Twenty Minutes’ is shared below. “I coughed before the first song. That doesn’t bode well. Not surprising, but […]