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Category: Hypermobility Syndromes

Wednesday is a big day! The 2017 EDS Diagnostic Criteria will be Published!

Wednesday, March 15th, 2017 is the day that the highly anticipated newly updated EDS diagnostic criteria will be released. The Ehlers-Danlos Society is holding a webinar in the morning at 9:30 am; however, it’s reached capacity. I will be listening in along with everyone else on the webinar. I was also graciously asked to help moderate a live Q&A session in the EDS Life Hacks group on Facebook at 4 pm EST on Wednesday afternoon. Our regularly scheduled “Just 5 Minutes” class will be held at 2:30 pm EST and then I will be live via video stream in...

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Life As A Bobble Head – Neurosurgery and The Hypermobile Patient

Life as a bobble head – neurosurgery and the hypermobile patient “Surgery should be considered as a last resort. Most patients with EDS will not need neurosurgery.” – Dr. Henderson I spoke to my PT about this today.  I stated that I wish we could do a study on hypermobile patients (patients with hypermobility syndrome/Ehlers-Danlos Syndromes) who do an intensive, proper PT program, one that has foundations in natural movement principles and biomechanics of the body, versus those who have surgery without an intensive PT program first.  First, let me say that I do not believe that anyone opts...

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Beighton Score for Hypermobility

The Beighton Score for Hypermobility  The Beighton Score has been used for many years as an indicator of joint hypermobility syndrome. Now, it is used more as a clinical tool to perform a quick assessment for generalized hypermobility; however, there are 2 key points to remember according to Hypermobility Syndromes Association’s website: “i. A high Beighton score by itself does not mean that an individual has a hypermobility syndrome. Other symptoms and signs need to also be present. ii. A low score should be considered with caution when assessing someone for widespread pain as hypermobility can be present at...

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Move More. Move Better.: Moving Naturally with Hypermobility

#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

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Mast Cell Research: Mast Cell Research

Happy Birthday Never Bet Against Occam! We are Celebrating with 116 🌟🌟🌟🌟🌟 Reviews!

Happy Birthday Never Bet Against Occam! We are Celebrating with 116 🌟🌟🌟🌟🌟 Reviews!

What a way to celebrate the 1 year anniversary of the publishing of ‘Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity’ (2016, Sisters Media, LLC) that by sharing some of the recent reviews!  “Five Stars – So so so great for anybody dealing with Mast […]