****Guest post by Kendra Fletcher. Kendra does not have EDS or HSD, but her story and information about preparing for her doctor’s appointment are helpful for anyone who is living with a chronic illness, or who is struggling with an undiagnosed health condition.*** “YOU are a major contributor to your healthcare team. One thing I’ve learned is that you can’t give up all of your power to doctors, professionals, experts, etc. Yes, you should seek their advice. Yes, they are experienced and knowledgeable. Yes, they add value and have expertise. However, if you’re feeling that something is “off” or...Read More
Category: Life Hacks
Wednesday, March 15th, 2017 is the day that the highly anticipated newly updated EDS diagnostic criteria will be released. The Ehlers-Danlos Society is holding a webinar in the morning at 9:30 am; however, it’s reached capacity. I will be listening in along with everyone else on the webinar. I was also graciously asked to help moderate a live Q&A session in the EDS Life Hacks group on Facebook at 4 pm EST on Wednesday afternoon. Our regularly scheduled “Just 5 Minutes” class will be held at 2:30 pm EST and then I will be live via video stream in...Read More
Download the EDS Wellness App today! Who is EDS Wellness? EDS Wellness is a 501(c)(3) nonprofit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), connective tissue diseases, and related comorbidities. 1. The EDS Wellness HelpLine is live! You can schedule 15-minute phone appointments, or send an email to firstname.lastname@example.org Direct link to HelpLine appointment scheduling – http://edswellness.org/index.php/make-an-appointment/ See original post announcing the EDS Wellness HelpLine by going to http://edswellness.org/index.php/2016/10/16/eds-wellness-helpline-live-download-eds-wellness-app-make-appointment-register-classes-seminars-conferences/ 2. EDS Wellness has an App! Now available through iTunes or Google Play! Link to EDS Wellness...Read More
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Integrative Wellness Retreats: Wellapalooza
Move More. Move Better.: Moving Naturally with Hypermobility
(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]
Yoga for Hypermobility : The Hypermobile Yogi
- Gentle Hatha Flow Yoga for Hypermobility and Chronic Pain with Kendra Neilsen Myles of EDS Wellness
- Practicing Yoga Safely with Hypermobility
- Mind-Body Strategies for Hypermobility with Chronic Pain Class at The Mindfulness Center with EDS Wellness
- Dr. Alan Pocinki’s Presentation at the EDS DC Support Group Meeting (March 2017)
- #EDSFitTip – Standing leg exercises for Hypermobility and Dysautonomia or POTS
Mast Cell Research: Mast Cell Research
‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!
Thank you to everyone who participated in the Mast Cell Research ‘Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!’ We are excited to announce that our winner, chosen at random, is Karen Smith- Will! Karen’s story ‘Twenty Minutes’ is shared below. “I coughed before the first song. That doesn’t bode well. Not surprising, but […]