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Category: Living with EDS

‘Loving My Skin’ – Sara Geurts’ Story About Living with Ehlers-Danlos syndrome

Living with EDS – Sara’s Classical Ehlers-Danlos syndrome Story “There’s not really a specific place to start, so we’ll just jump right in. I’ll start out by saying, I was not always comfortable or accepting of my disorder, and the effects it had on my everyday life. I had been diagnosed around the age of 10, but had noticed my skin as early as the age of 7 or 8. Once I had been diagnosed, one of my sisters had also been diagnosed with Diabetes. Given this was in the 00’s and the lack of information we had was...

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EDS Integrative Healing Brochure

‘EDS Integrative Healing Brochure’ (see link below) Graphic design by Kristi Posival – an incredible artist, graphic designer, friend and patient with Vascular Ehlers-Danlos syndrome. This slideshow requires JavaScript. ***Please note – this brochure is protected by copyright laws. If you would like to reprint or would like print copies, please send an email to info@edswellness.org*** Direct link to Integrative Healing Brochure – http://edswellness.org/index.php/2016/07/05/eds-integrative-healing-brochure/ Dr. Clair Francomano’s slide presentation from Wellapalooza 2016 that corresponds with the Integrative EDS Healing Brochure: ‘Approaches to Integrative Health for Persons with Ehlers-Danlos syndrome’ –...

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The Latest – Updates and Information on Upcoming EDS Wellness Events and Programs

1. EDS Wellness has an App! The App is free and has information about events, services, and classes. To read about the EDS Wellness App, go to http://edswellness.org/index.php/eds-wellness-app/ To download the EDS Wellness App via iTunes, go to https://appsto.re/us/N7zbfb.i To download the EDS Wellness App via Google Play, go to https://play.google.com/store/apps/details?id=com.healcode.HC2207 The EDS Wellness App makes it easy to register for HelpLine Appointments, personal appointments, classes, workshops, and conferences. You can also register through EDS Wellness’ web page through the MindBody App itself (if you have it), through links provided on the EDS Wellness’ website or our other related...

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11 Quotes from EDS Athletes – “Fighting for a Good Attitude with EDS” from Invisible Illness Week 2015

During Invisible Illness Week in 2015, Lisa, the founder of Invisible Illness Week, asked if I would be a guest speaker for a virtual discussion/chat on the Invisible Illness Week Facebook Page. My topic was about fighting for a good attitude – a fitting topic for who I am and the work that I do. However, I can’t think about fighting for a good attitude without thinking of the amazing members of the EDS Athletes Facebook Group. Before my Facebook chat for Invisible Illness Week in 2015, I posted a question about the topic of staying positive and having...

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#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

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Another message from Dr. Lawrence Afrin – Thursday, July 20, 2017

Another message from Dr. Lawrence Afrin – Thursday, July 20, 2017

Another message from Dr. Lawrence Afrin: Thursday, July 20, 2017 “It has been brought to my attention that there has been much misinterpretation of my July 11 announcement.  There are several issues and misperceptions I would like to address. (1) My #1 goal my entire professional life has been to provide my patients the best […]