The EDS Spiral ***Posted earlier on my Facebook page. Because I received many comments, I wanted to share my story here as well. I’m sure many can relate. I so was not in the mood, but my husband needed clothes to workout. He asked me to meet him for a cycling date. All I could think about is what I preached at Wellapalooza 2015 , and what Lara Bloom talked about last night – our muscles do what our tissues cannot. A conditioned body handles the comorbidities associated with Ehlers-Danlos Syndrome (EDS) much better than a deconditioned one. Dr. Theo...Read More
Category: The EDS Spiral
Are you are afraid of falling? Or how as movement, exercise or physical therapy may increase your chronic pain associated with Ehlers-Danlos Syndrome? One of the largest contributors (not the only) to how “severe” our own personal case of EDS (or Hypermobility Syndrome) is, stems from fears of movement and/movement causing more pain. Kinesophobia is the fear of movement & Kinesiophobia is the fear of movement/activity/exercise/PT causing more pain or increasing chronic pain. And these fears have been found to be a large contributing factor to making EhlersDanlos symptoms & issues worse. That doesn’t mean that our fear isn’t...Read More
The EDS Spiral – it is real, devastating, but you can climb out. As I sit here and type this, I am thinking…. “This is hard. Really hard. How do I explain all the information that’s in my head, in a way that helps people see the connections that I see? How can I help them feel empowered & believe that there ARE ways that we CAN help ourselves?” Truth is … no one has coined the phrase “The EDS Spiral.” I do believe that medical research on Ehlers-Danlos syndrome supports this idea, but a small piece of...Read More
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