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Category: Wellness

Whole Health Life – One of Life’s Essential Tools for Our Illness-Preventing “Tool Box”

“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.” Something about Whole Health Life resonated with me — well, a lot of things. While the topics that author, Shannon Harvey, writes about are nearly identical to the founding principles of Strength/Flexibility/Health/EDS, the validity of each has been personally humbling — especially over the last two years. One topic discussed in Whole Health Life that stuck with me...

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EDS Integrative Healing Brochure

‘EDS Integrative Healing Brochure’ (see link below) Graphic design by Kristi Posival – an incredible artist, graphic designer, friend and patient with Vascular Ehlers-Danlos syndrome. This slideshow requires JavaScript. ***Please note – this brochure is protected by copyright laws. If you would like to reprint or would like print copies, please send an email to*** Direct link to Integrative Healing Brochure – Dr. Clair Francomano’s slide presentation from Wellapalooza 2016 that corresponds with the Integrative EDS Healing Brochure: ‘Approaches to Integrative Health for Persons with Ehlers-Danlos syndrome’ –...

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EDS Mind-Body Wellness Seminars – Register Now!

Mind-Body Strategies for Hypermobility and Chronic Pain This 4 class/seminar series on Mind-Body Strategies for hypermobility and chronic pain, and is a collaboration between EDS Wellness and Dr. Deborah Norris with The Mindfulness Center in Bethesda, MD. The purpose of this series of 4 classes is based on two principles: 1. Part of the RYS 200 Yoga Instructor Training Program is a Seva requirement. Seva is a series of 4 yoga classes taught to a particular community – free of charge. It’s the community service requirement of the RYS 200 certification. Kendra Neilsen Myles of EDS Wellness picked the...

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Integrative Healing Brouchure for Ehlers-Danlos syndrome (EDS)

The Integrative Healing Brochure for Ehlers-Danlos syndrome (EDS) was a year-long collaborative project between Kendra Neilsen Myles, EDS Wellness, Dr. Clair Francomano, Charles Thorpe, Emily Telfair, N.D., and included the help of a professional editor and graphic designer. If you are interested in downloading or printing the brochure yourself, please send an email to, or submit a request through the contact form below. This brochure is copyright protected and may not be republished, printed, or distributed without permission.  All rights reserved. The final brochure PDF has been uploaded here, as well as on Wellapalooza’s website, and to EDS

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Wellapalooza 2016 is in less than two weeks!

Wellapalooza 2016 is in less than two weeks! June 10th-12th, 2016 We’ve had an influx of registrations over the last day and spaces are limited. If you would like to attend Wellapalooza 2016, or know someone else who may be interested, please make sure that registration is complete by Friday, June 3rd! Additionally, we are also holding a Physicians Learning Lunch in conjunction with Wellapalooza 2016. The Physicians Learning Lunch is on Sunday, July 12th, 2016 at Turf Valley Resort in Ellicott City, MD. Dr. Afrin’s generously agreed to stay for all three days of Wellapalooza 2016. There are ample...

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Move More. Move Better.: Moving Naturally with Hypermobility

#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

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Mast Cell Research: Mast Cell Research

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

Thank you to everyone who participated in the Mast Cell Research ‘Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!’ We are excited to announce that our winner, chosen at random, is Karen Smith- Will! Karen’s story ‘Twenty Minutes’ is shared below. “I coughed before the first song. That doesn’t bode well. Not surprising, but […]