****Guest post by Kendra Fletcher. Kendra does not have EDS or HSD, but her story and information about preparing for her doctor’s appointment are helpful for anyone who is living with a chronic illness, or who is struggling with an undiagnosed health condition.*** “YOU are a major contributor to your healthcare team. One thing I’ve learned is that you can’t give up all of your power to doctors, professionals, experts, etc. Yes, you should seek their advice. Yes, they are experienced and knowledgeable. Yes, they add value and have expertise. However, if you’re feeling that something is “off” or...Read More
Category: Women’s Health
“This is a sponsored post. I have been compensated through the Chronic Illness Bloggers network. All opinions remain my own, and I was in no way influenced by the company.” Last week, I posted How you can be allergic to semen and how it relates to Mast Cell Activation Syndrome (MCAS) and Ehlers-Danlos syndrome (EDS); however, in this post I also discussed other chronic pelvic pain conditions that seem to “travel in packs” for those of us living with a chronic illness (or several). While the point of the article was to explain how this type of allergy is...Read More
“Let’s talk about sex baby, let’s talk about you and me …”- How you can be allergic to semen and how it relates to Mast Cell Activation Syndrome (MCAS) and Ehlers-Danlos Syndrome (EDS)
“Let’s talk about sex baby, let’s talk about you and me. Let’s talk about all the good things and the bad things that may be…..” Let’s also talk about how you can be allergic to semen – The Human Seminal Protein Allergy (HSPA) and how it relates to Mast Cell Activation Syndrome (MCAS) and Ehlers-Danlos Syndrome (EDS) Did you know that you can be allergic to semen? The actual medical term is called “The Human Seminal Protein Allergy,” or HSPA for short – and it’s far from rare. In fact, my guess is that it’s even more common than current...Read More
Could “Vaginal Weightlifting” be beneficial for Pelvic Floor Instability, a common issue faced by many women with EDS?
Say what?? That’s right, “Vaginal Weightlifting” to help a variety of issues women may experience “down there,” including Pelvic Floor Instability. Awesome mental image – right? As someone who has long suffered with various issues “down there,” this article immediately peaked my interest. And because I am in the process of putting together an article for another blog discussing the variety of issues those of us with Ehlers-Danlos Syndrome (EDS) and/or Mast Cell Activation Syndrome (MCAS) may be blessed with just because we are women, I wanted to read about these 10 benefits. You can read for yourself below....Read More
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Integrative Wellness Retreats: Wellapalooza
Move More. Move Better.: Moving Naturally with Hypermobility
(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]
Yoga for Hypermobility : The Hypermobile Yogi
- Gentle Hatha Flow Yoga for Hypermobility and Chronic Pain with Kendra Neilsen Myles of EDS Wellness
- Practicing Yoga Safely with Hypermobility
- Mind-Body Strategies for Hypermobility with Chronic Pain Class at The Mindfulness Center with EDS Wellness
- Dr. Alan Pocinki’s Presentation at the EDS DC Support Group Meeting (March 2017)
- #EDSFitTip – Standing leg exercises for Hypermobility and Dysautonomia or POTS
Mast Cell Research: Mast Cell Research
Another message from Dr. Lawrence Afrin: Thursday, July 20, 2017 “It has been brought to my attention that there has been much misinterpretation of my July 11 announcement. There are several issues and misperceptions I would like to address. (1) My #1 goal my entire professional life has been to provide my patients the best […]