This page provides links to information and resources for exercise and physical therapy. 

“Just because you have EDS, doesn’t mean you can’t do amazing things with your body.” – Dr. Lavallee

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EDS Exercise and PT Information (Summarized in series of 3 posts):

Post 1: Questions and answers about exercise and EDS – Answers to common questions

Post 2: Questions and answers about exercise and EDS – Types of workouts and exercises

Post 3: Questions and answers about exercise and EDS – Additional links, information and resources on physical therapy and exercise

Traditional workouts & therapies (***, Please note: All links to information below are also available by clicking here or see link for Post 3: Questions and answers about exercise and EDS above.  Links will be on available soon on this page as well):

– The Melt Method has been a hot topic because it involves light exercise with myofascial release-type therapy for chronic pain.

– The Bowen Technique for pain management & restoring movement by Isobel Knight.

**(YouTube video – An introduction to the Bowen Technique)

– Restorative Exercise Institute by Kathy Bowman (Natural Movement Training)

– T-Tapp is a series of sequential movements to put the body in proper alignment. Many with chronic conditions have found success with T-Tapp. To read more, click here.

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Links & resources:

– PT & Exercise Resources (see additional links from this page on the website):

DoYogWithMe.com – Free Yoga videos

– Outside Online.com – Natural Born Leaders (natural movement training)

– Dr. Lavallee’s Core Strengthening Exercises

– Proper Head & Neck alignment by DoYogaWithMe.com

Exercise/PT Tips & Video Clips (not all are uploaded just yet, so you may need to refer to Instagram or Tumblr for certain things – ie. shoulder exercises)

Webinars:

– Dr. Lavallee’s Webinar “Exercise is Medicine for Ehlers-Danlos”

– Jan Dommerholt’s Webinar “Physical Therapy for Ehlers-Danlos”

– Webinar by EDNF on Bracing and Support for stability & pain

Presentations:

– EDS UK’s one-day conference presentation on “EDS & exercise.”

– Jan Dommerholt’s presentation from the 2014 EDNF Physicians Conference: “Physical Therapy in the management of Ehlers-Danlos.”

– 2014 EDNF Conference: “PT for EDS “Restorative Rehabilitation a holistic whole-body approach for EDS.”

– EDNF Conference “Compression supports for stability” presentation.

– EDNF Conference “Foot & Ankle Issues with EDS.”

– EDNF Conference “Pain Management for EDS through manual PT approach.”

– EDNF Conference “Hip & Shoulder Pointers.”

– EDNF Conference “SI joint dysfunction and EDS.”

– EDNF Conference “Shoulder Instability & EDS.”

– EDNF Conference “Tai Chi for stability and strength.”

– EDNF Conference “Hypermobility & gaining function and strength.”

– EDNF Conference “Pilates – what can it offer the EDS patient.”

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Articles:

– Prolotherapy in Connective Tissue Disorders

– Dry Needling Therapy

– Chronic Fatigue Syndrome & benefits of exercise

Books:

– Move your DNA by Katy Bowman

– Movement Matters by Katy Bowman

– Alignment Matters by Katy Bowman

– Isobel Knight is a medical writer, who has written on hypermobility & The Bowen Technique. Click here to read about her books.

To learn more on the some of the most up-to-date information on Exercise & PT with EDS, you click the link and listen to the webinar “Exercise is Medicine for Ehlers-Danlos” by Dr. Lavallee and sponsored by EDS Awareness.

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Things to remember: 

You have the make the best decision for you, but do not allow the limitations of others limit what you do or do not do. There is no “rule” for exercise and EDS.  There are guidelines based on knowing what EDS is and how it can affect our bodies, but for every one person that can’t, there are 3 people who can.

While I cannot tell people how to find the motivation to exercise or do physical therapy, I can provide tips on how I find the strength to push through and offer a few recommendations on how to properly and safely exercise with EDS. I do not believe that there is one right way to exercise or do physical therapy with EDS, nor to I feel as though there is a “do not” rule that applies to all of us either. We all have different cases of EDS, along with various other issues (or not), face different challenges, motivations, and financial constraints. What is most important is to find what helps you build strength, keeps you motivated, and makes you feel good. It’s not rocket science or a magic pill, but so many have made great strides when they focus on what they can do, versus what they cannot. Error on the side of caution with who and where you receive your information from and find what works for you, even if it seems a bit different from the norm. Start slow. Take baby steps. Do something for Just 5 Minutes a day, and build strength a day at a time.

“You can do just about anything that you want to do (with EDS), you just have to have the mind power.” – Dr. Lavallee

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Page last updated – January 24th, 2017

Disclaimer: This information has been provided to help answer some common questions that often come up when discussing exercise and EDS. It is not a substitute for medical advice, and you have to make the best decision for your particular situation. All information that I have provided is based upon recommendations given through various presentations I’ve seen, conversations I’ve had with many of those who help diagnose and treat us, as well as my volunteer work with EDNF for the last three years, answering emails to the HelpLine. When pertinent, I also pull from personal experience as someone who with lives EDS, has consistently worked out since I was an 11yo, my degree in public health/exercise science and my work in the medical field. Please read full disclaimer here