The EDS Spiral is what I use to describe the physical, mental and emotional spiral that many with Ehlers-Danlos Syndrome have gone through after an injury, trauma or just receiving an EDS diagnosis. “The EDS Spiral” is my own term, but I do believe that medical research on EDS does prove it this phenomenon. However, there has always been a small piece of information that has been missing in the EDS research for me to prove my theory valid .. until recently. In fact, many presentations on EDS now discuss this spiral and the way a series of events occur similar to falling dominoes, one right after the other, all from one trigger. Hence why many describe this phenomenon like the body becoming unglued and in many ways, it does. The EDS Spiral – it is real, devastating, but you can climb out. This page will be dedicated to information, links and resources that discuss The EDS Spiral and how you can help yourself climb out. Or.. even better, help prevent it to the best of your ability. This page will be updated often, so please check page for updates!
The EDS Spiral
– Blog post “What does the EDS Spiral really look like? Read this!”
– Mt. Sinai Hospital Genetics Department presentation: “EHLERS-DANLOS SYNDROME: THE CHALLENGES IN DIAGNOSIS AND MANAGEMENT OF AN INCREASINGLY DIAGNOSED BUT POORLY UNDERSTOOD GENETIC DISORDER.”