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Category: Disability

Applying for Disability Benefits with Ehlers Danlos Syndrome & Other Hypermobility Related Disorders

***Guest post was written by Disability Help and originally shared on EDS Wellness. Medical content & information on Ehlers-Danlos syndromes, hypermobility disorders, and related conditions by EDS Wellness. Article is reshared with permission.*** Ehlers-Danlos syndromes are a group of heritable connective tissue disorders that are caused by various genetic defects, typically in the collagen protein used to make our connective tissues, but sometimes in other connective tissue components. It is believed that both genetic and epigenetic mutations — both to the structure or function of collagen — play a role in the various types of Ehlers-Danlos syndromes. These disorders...

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Just another liberal disease

I just shared this article ( on Mast Cell Activation Syndrome (MCAS) written by FoxNews on my personal Facebook page. Considering I published Dr. Afrin’s book on MCAS called ‘Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity‘ (Dr. Afrin was the “online physician” who was quoted in the article), I can say without a doubt that MCAS is more than real, and can be incredibly disabling, not to mention isolating. It can also cause death. People are dying because of constant misdiagnosis, medical errors that can be avoided, and...

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Adaptive Yoga – Yoga for All!

Most know how much I love yoga, and how strongly I feel about it being perfectly safe when done right for those with Hypermobility. There are also countless types of yoga, including Restorative Yoga, where you do more laying down, relaxing, and meditating than moving. There’s also Chair Yoga, Yoga Nidra, and much more! Yoga Nidra, a type of meditative yoga practice, is one of my favorite types of yoga by far! The Restorative Yoga class at The Mindfulness Center during Wellapalooza 2016, which was led by Dr. Norris, had many of us in tears. Restorative Yoga, and yoga,...

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Move More. Move Better.: Moving Naturally with Hypermobility

#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

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Mast Cell Research: Mast Cell Research

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

Thank you to everyone who participated in the Mast Cell Research ‘Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!’ We are excited to announce that our winner, chosen at random, is Karen Smith- Will! Karen’s story ‘Twenty Minutes’ is shared below. “I coughed before the first song. That doesn’t bode well. Not surprising, but […]