Select Page

Category: EDS Resources

‘Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorders’ (2017) by Clair Smith of HMSA

‘Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorders’ (2017) written by Claire Smith, Publications Editor & Partnership Director at The Hypermobility Syndromes Association (HMSA), based in the United Kingdom. Claire worked on this incredible resource for several years, nearly completing it just before the International Consortium began working on updated Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) criteria — published March 2017. Obviously, she did not want to publish a new book with obsolete information, especially considering the intent was for this incredible resource to be as up-to-date as possible. Hence, Claire waited to publish ‘Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility...

Read More

EDS Integrative Healing Brochure

‘EDS Integrative Healing Brochure’ (see link below) Graphic design by Kristi Posival – an incredible artist, graphic designer, friend and patient with Vascular Ehlers-Danlos syndrome. This slideshow requires JavaScript. ***Please note – this brochure is protected by copyright laws. If you would like to reprint or would like print copies, please send an email to*** Direct link to Integrative Healing Brochure – Dr. Clair Francomano’s slide presentation from Wellapalooza 2016 that corresponds with the Integrative EDS Healing Brochure: ‘Approaches to Integrative Health for Persons with Ehlers-Danlos syndrome’ –...

Read More

EDS Wellness’ HelpLine is Live and Open for Appointments and Emails!

Download the EDS Wellness App today! Who is EDS Wellness? EDS Wellness is a 501(c)(3) nonprofit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), connective tissue diseases, and related comorbidities.   1. The EDS Wellness HelpLine is live! You can schedule 15-minute phone appointments, or send an email to Direct link to HelpLine appointment scheduling – See original post announcing the EDS Wellness HelpLine by going to 2. EDS Wellness has an App! Now available through iTunes or Google Play! Link to EDS Wellness...

Read More

Integrative Healing Brouchure for Ehlers-Danlos syndrome (EDS)

The Integrative Healing Brochure for Ehlers-Danlos syndrome (EDS) was a year-long collaborative project between Kendra Neilsen Myles, EDS Wellness, Dr. Clair Francomano, Charles Thorpe, Emily Telfair, N.D., and included the help of a professional editor and graphic designer. If you are interested in downloading or printing the brochure yourself, please send an email to, or submit a request through the contact form below. This brochure is copyright protected and may not be republished, printed, or distributed without permission.  All rights reserved. The final brochure PDF has been uploaded here, as well as on Wellapalooza’s website, and to EDS

Read More

Wellapalooza 2016 is in less than two weeks!

Wellapalooza 2016 is in less than two weeks! June 10th-12th, 2016 We’ve had an influx of registrations over the last day and spaces are limited. If you would like to attend Wellapalooza 2016, or know someone else who may be interested, please make sure that registration is complete by Friday, June 3rd! Additionally, we are also holding a Physicians Learning Lunch in conjunction with Wellapalooza 2016. The Physicians Learning Lunch is on Sunday, July 12th, 2016 at Turf Valley Resort in Ellicott City, MD. Dr. Afrin’s generously agreed to stay for all three days of Wellapalooza 2016. There are ample...

Read More
  • 1
  • 2

Cannot load blog information at this time.



Sponsored Ads

Move More. Move Better.: Moving Naturally with Hypermobility

#EDSFitTip – the Hip Hinge

#EDSFitTip – the Hip Hinge

(Top left pic is proper form for hip hinge – others are examples of going too far) The “hip hinge” is the perfect natural movement exercise that can be done easily. The point is to feel and learn how to engage the muscles that attach to your pelvis/SI joint and knees and to help prevent […]

a proud member of



Mast Cell Research: Mast Cell Research

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

‘Twenty Minutes’ by Karen Smith-Will – Winner of Our Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!

Thank you to everyone who participated in the Mast Cell Research ‘Team Taylor/Mast Cell Awareness Tank & Mast Cell Story Giveaway!’ We are excited to announce that our winner, chosen at random, is Karen Smith- Will! Karen’s story ‘Twenty Minutes’ is shared below. “I coughed before the first song. That doesn’t bode well. Not surprising, but […]