Day: February 16, 2015

How is EDS Diagnosed?

People often ask me, “How is EDS diagnosed?” Here’s a pretty simple explanation: EDS or Ehlers-Danlos Syndrome is usually diagnosed by a geneticist or through the genetics department  of a large hospital. However, not all geneticists or genetics departments are up-to-date on the latest criteria for diagnosing EDS.  An EDS diagnosis used to require a …

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"Exercise is Medicine for Ehlers-Danlos" – Webinar Summary

Long before I knew that I had EDS, I figured out how crucial exercise was in the management of my chronic fatigue, physical strength & stability and overall well-being.  At the time that I was diagnosed with EDS, I had already been working out consistently for over 10 years (since age 11yo), so imagine my …

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