Our Stories of Strength – Living with Ehlers-Danlos Syndrome
Our SOS Media, LLC releases debut Anthology entitled, Our Stories of Strength – Living with Ehlers-Danlos Syndrome in conjunction with Ehlers-Danlos Syndrome awareness month.
Our SOS Media, LLC releases debut Anthology entitled, Our Stories of Strength – Living with Ehlers-Danlos Syndrome in conjunction with Ehlers-Danlos Syndrome awareness month.
What are the signs and symptoms of EDS? Research and medical history of patients with EDS is showing that Ehlers-Danlos Syndrome is a multi-systemic condition. Multi-systemic means that multiple systems in the body can be affected by each type of EDS and there is an enormous spectrum of signs and symptoms that can present due …
Two joints that are not usually thought of as hypermobile, but are in so many women with Ehlers-Danlos Syndrome or other connective tissues disorders are both the Pelvis and the Sacroiliac Joint (SI) joint. Neither the Pelvis or Sacroiliac Joint are not pushed or pulled (AKA – “tested”) when someone is using the Beighton Score assessment to test …
How to strengthen your gluts to help with pelvic and SI joint stability Read More »
Are you are afraid of falling? Or how as movement, exercise or physical therapy may increase your chronic pain associated with Ehlers-Danlos Syndrome? One of the largest contributors (not the only) to how “severe” our own personal case of EDS (or Hypermobility Syndrome) is, stems from fears of movement and/movement causing more pain. Kinesophobia is …
What does The EDS Spiral really look like? Read This! Read More »
The EDS Spiral – it is real, devastating, but you can climb out. As I sit here and type this, I am thinking…. “This is hard. Really hard. How do I explain all the information that’s in my head, in a way that helps people see the connections that I see? How can I …
The EDS Spiral – it is real, devastating, but you can climb out. Read More »
Got IBS? (or EDS with GI issues) My stomach has never been my friend. As I child, any emotion I felt was “felt” in my stomach. First, I was diagnosed with “spastic esophagus” around 11/12yo (probably earlier), after numerous trips to the ER with debilitating stomach pain. After a lot of diagnostic testing, I was …
I’m pressing play …. Sometimes life comes full-circle and for me, it has in so many crazy ways. I studied public health in college, a degree that my father questioned what I would do with, but I felt so strongly about the benefits of good nutrition & exercise, that I just wanted to surround my …
Open Gym at Fitness for Health and Bethesda Physiofitness – My night out with 6 of my favorite kids. We had so much fun and it was great to catch-up with my previous boss, Marc and learn about the program that he’s put together with Jan Dommerholt from Bethesda Physiocare. While studying Public Health at …