Our Stories of Strength – Living with Ehlers-Danlos Syndrome
Our SOS Media, LLC releases debut Anthology entitled, Our Stories of Strength – Living with Ehlers-Danlos Syndrome in conjunction with Ehlers-Danlos Syndrome awareness month.
Month: April 2015
Signs and Symptoms of EDS
What are the signs and symptoms of EDS? Research and medical history of patients with EDS is showing that Ehlers-Danlos Syndrome is a multi-systemic condition. Multi-systemic means that multiple systems in the body can be affected by each type of EDS and there is an enormous spectrum of signs and symptoms that can present due …
How to strengthen your gluts to help with pelvic and SI joint stability
Two joints that are not usually thought of as hypermobile, but are in so many women with Ehlers-Danlos Syndrome or other connective tissues disorders are both the Pelvis and the Sacroiliac Joint (SI) joint. Neither the Pelvis or Sacroiliac Joint are not pushed or pulled (AKA – “tested”) when someone is using the Beighton Score assessment to test …
How to strengthen your gluts to help with pelvic and SI joint stability Read More »
What does The EDS Spiral really look like? Read This!
Are you are afraid of falling? Or how as movement, exercise or physical therapy may increase your chronic pain associated with Ehlers-Danlos Syndrome? One of the largest contributors (not the only) to how “severe” our own personal case of EDS (or Hypermobility Syndrome) is, stems from fears of movement and/movement causing more pain. Kinesophobia is …
What does The EDS Spiral really look like? Read This! Read More »
The EDS Spiral – it is real, devastating, but you can climb out.
The EDS Spiral – it is real, devastating, but you can climb out. As I sit here and type this, I am thinking…. “This is hard. Really hard. How do I explain all the information that’s in my head, in a way that helps people see the connections that I see? How can I …
The EDS Spiral – it is real, devastating, but you can climb out. Read More »
Got IBS? (or EDS with GI issues)
Got IBS? (or EDS with GI issues) My stomach has never been my friend. As I child, any emotion I felt was “felt” in my stomach. First, I was diagnosed with “spastic esophagus” around 11/12yo (probably earlier), after numerous trips to the ER with debilitating stomach pain. After a lot of diagnostic testing, I was …
I am pressing play ….
I’m pressing play …. Sometimes life comes full-circle and for me, it has in so many crazy ways. I studied public health in college, a degree that my father questioned what I would do with, but I felt so strongly about the benefits of good nutrition & exercise, that I just wanted to surround my …
Open Gym at Fitness for Health and Bethesda Physiofitness – my night out with 6 of my favorite kids
Open Gym at Fitness for Health and Bethesda Physiofitness – My night out with 6 of my favorite kids. We had so much fun and it was great to catch-up with my previous boss, Marc and learn about the program that he’s put together with Jan Dommerholt from Bethesda Physiocare. While studying Public Health at …