Summary of the latest information and treatment approaches for Ehlers-Danlos Syndrome Hypermobility Type (Repost of Beating Limitations summary on EDS UK’s “Managing your EDS” One Day Conference on May 9th) One of other admins for the EDS Athletes group on Facebook that I help oversee is Donna. Donna writes for a blog called Beating Limitations, which exactly …
This page contains helpful links, resources, medical articles and pertinent information for those who are seeking an Ehlers-Danlos diagnosis, or who are recently diagnosed and would like to learn more. Many times people think, “I have EDS, now what?” This is where this page of resources can be very helpful. All resources are taken from …
Brighton Criteria for Ehlers-Danlos Syndrome In the last 1990’s, the 1997 Nosology outlined new diagnostic criteria for all Ehlers-Danlos Syndromes. As a result, The Brighton Criteria for Ehlers-Danlos was developed as a revision to the previously described types of Ehlers-Danlos Syndromes. EDS categorization went from types to using names such as EDS Hypermobility Type instead of EDS Type …
The Beighton Score for Hypermobility The Beighton Score has been used for many years as an indicator of joint hypermobility syndrome. Now, it is used more as a clinical tool to perform a quick assessment for generalized hypermobility; however, there are 2 key points to remember according to Hypermobility Syndromes Association’s website: “i. A high …
It’s here! Our Stories of Strength – Living with Ehlers-Danlos Syndrome in PRINT is available! Something incredible happened today… It’s almost surreal. A few key happenings behind-the-scenes led to this very moment: Our Stories of Strength – Living with Ehlers-Danlos Syndrome is HERE! We know that you’ve been waiting as impatiently as we have been, …
