10 ways I have changed my Negative Nelly DNA I was born with Negative Nelly DNA. No joke. I remember feeling it to the core of my being as a kid. Yet my father would meet my constant negative with something positive. He always challenged me to see things differently, focus on the good around …
What does Ehlers-Danlos Syndrome look like under a microscope? Do you ever wonder what Ehlers-Danlos Syndrome or having “issues in your tissues,” actually looks like compared to normal connective tissue? Maybe you wonder if the different types of EDS look the same under a microscope, or does each type really look different? If the each type of …
What does Ehlers-Danlos Syndrome look like under a microscope? Read More »
How are you handicapped? Guest post by Monica Kaye Snyder Today was my pre-op appointment with my primary care doctor. I didn’t sleep much last night because of this strange vibration in my arms and horrible legs spasms. I felt very uncomfortable this morning, but I was thrilled the girls had the day off …
What is an invisible illness? Personally, I don’t consider myself sick or even chronically ill, but I do feel like I have an invisible condition (actually conditions). I’m pretty sure that there are a number of us with EDS who do not identify as being “sick” and honestly, I don’t want to. I do not …
Shaping our emotions – how positive emotions, outlook and behaviors affect our overall health and well-being, as well as can impact those around us. In the last few years, medical and psychological research is growing on how positive emotions, outlook and behaviors affect our overall health and well-being, as well as can impact those …
I don’t usually post my personal journey with EDS on my EDS Wellness business accounts for a number of reasons, but mostly because I’ve always felt like I was hiding. Because I’ve never really discussed my personal issues & struggles with my family and friends (still do not for the most part), I started my …
Living with an Invisible Illness – Invisible Illness Week 2015 Read More »
This is post 3 of a 3 post series on answers to questions about exercise and EDS; however, this post includes various helpful resources & links pertaining to physical therapy, mainstream fitness programs and other related information for those living with EDS. To read post 1 out of this 3 post series, go here. To …
Answers to questions about exercise and EDS (post 3 of 3 post series) Read More »
This is post 2 of a three post series on answers to questions about exercise and EDS; however, this post focuses on various types of mainstream workouts and exercises, versus physical therapy and standard questions. To read post 1 in this three post series, go here. To read post 3 in this three post series, …
Answers to questions about exercise and EDS (Post 2 of 3 post series) Read More »
Diagnosing Mast Cell Activation Syndrome (MCAS) – Post 4 of 4 in series The decision I will always regret and life post October 2014 flu shot “Katie’s list of symptoms included the following: 24/7 headaches and migraines, 24/7 stabbing ear pain, hyperacusis, fatigue, abdominal pain, nausea, all over joint pain, constant sore throat, visual …
Diagnosing Mast Cell Activation Syndrome (MCAS) – More Questions and Answers (Post 3 of 4 in series) As a follow-up to my first and second posts about Diagnosing Mast Cell Activation Syndrome (MCAS), below are the additional questions that I asked and also emailed to Dr. Afrin & his responses. Questions and answers are posted …
