Yoga and Hypermobility – Managing Chronic Pain and Joint Stabilization with Ehlers-Danlos Syndromes/Hypermobility Syndromes “Yoga is dangerous for EDS.” “I was told not to do yoga.” “Yoga will make you end up in a wheelchair.” I’m sure that you’ve heard all these phrases before, and many people feel that all three are absolute truths. While …
Charity Ride for Dysautonomia International and why it’s so important For my Bethesda (or Maryland) friends and family, there’s a charity ride on Oct. 11th at Zengo Cycle for Dysautonomia International – a sister charity to EDNF, because conditions overlap so much. To sign-up, go to: www.zengocycle.com. You first have to purchase the charity ride …
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“When you hear the sound of hooves, think horses, not zebras.” This is a phrase that is referred to often when medical students are in medical school and the term “zebra” is used in reference to a rare disease or condition. Doctors are taught to expect common conditions, versus incorrectly diagnosing patients with rare conditions. …
(***Please note – the information contained in this post is being updated according to the current 2017 EDS Diagnostic Criteria. We will republish this post once it’s been rewritten and updated. To learn more about the 2017 EDS Diagnostic Criteria and Hypermobility Spectrum Disorders (HSD), please visit ‘Understanding the 2017 Ehlers-Danlos syndromes (EDS) and Hypermobility …
15 essentials to a successful career while living with a chronic illness When you go through a health crisis or even have to face going on disability (either through your employer or through social security), most of the time your life is turned upside down; focusing on your health is now all-consuming. It is hard …
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