How does it feel to be a second class person? Living in a civilized and developed country with supposedly one of the best health systems in the world and the world’s leading doctors I have never thought about finding myself sitting in a doctors office 6000 miles away from home because I was dismissed in …
Fight Song Video Project – Send In Your Video Clip! Max 1 min video clip of you singing, dancing, or both to “Fight Song” by Rachel Patton For anyone suffering from a chronic illness, including those who love and care for someone with a chronic illness, especially those with Ehlers-Danlos syndrome (EDS), Mastocytosis, Mast Cell …
Fight Song Video Project – Send In Your Video Clip! Read More »
Wellapalooza 2016 Retreat Registration Information Our 2016 Wellapalooza conference is a destination 3-day integrative health and wellness retreat. Think vacation, calm, fun, and informative – the perfect way to recharge your mind, body, and soul! Dates: June 10th – 12th, 2016 Where: Maryland – split between Bethesda and Columbia Venues: The Mindfulness Center (Bethesda, MD), …
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YTT Weekend – Session 1: The Language of Yoga (2.5 hrs) Taught by Jessie Norris Intro to Program Styles of Yoga Sun Salutations/Surya Namaskar Sanskrit
 May is EDS Awareness Month! In honor of EDS Awareness Month (May), Sarah Wells from My Stripy Life and I are sharing details on what you need to do to register for your FREE copy our parenting EDS Kids e-book ‘51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)‘ once it’s …
Horraay! I cannot explain how excited I am to finally be able to share this awesome project with everyone! For EDS Awareness month we will be giving you a sneak peek each day from our upcoming e-book ’51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)’ – coming soon for EDS Awareness Month!
What first started out as a joint blog post about parenting and having kids with EDS, turned into a 6 month-long project that Sarah Wells (from My Stripy Life) and I have been working on off and on, waiting for the right time to finish and release it. As we continued to work on it, we kept finding more and more to add, and even more information and resources that we wanted to make sure were included in our post – which then turned our joint blog post into a full resource e-book.
The real, no holds barred advice that we wish we knew and we hadn’t had to figure out for ourselves, the stuff that the medical books don’t always tell you!
Stay tuned for more top tips each day and information about how to get a copy of “51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)’ delivered straight to your inbox!
Cheers!
– Sarah & Kendra
Ehlers-Danlos syndrome (EDS) is a group of heritable connective tissue disorders that are caused by various genetic defects in the collagen protein used to make our connective tissues. These disorders can cause a wide variety of complications throughout all body systems – Ehlers-Danlos syndrome is very much a multi-systemic disease.
