When you have constant, non-stop whooshing in your head (no, not just tinnitus), you’ve been diagnosed with Classical Ehlers-Danlos syndrome (CEDS) 3x, but genetic testing came back negative, and the EDS world really doesn’t know what you have – other than you have some kind of connective tissue disorder that’s not Marfan Syndrome, VEDS, or …
Brought my oldest to yoga at The Mindfulness Center today & in class, I tried the modification/pose below. My son said I wasn’t off the floor, and I told him that I “so was off the floor!” Even a tiny bit counts – you have to start somewhere, and nothing happens if you do not …
Double yesterday – #Yoga & #Cycling. And I was in the bathroom, so obligatory bathroom selfie – just ’cause. And I clearly ran out of the house fast!
Vinyasa Flow Yoga with my friend Wendy at Village Yoga in Potomac, MD. And I was so sore afterwards!
“In one single moment, everything can change. What lurks inside the deepest depths of David Malarky threatens his entire existence…. Vascular Ehlers-Danlos Syndrome: The Journey Begins charts the story of David Malarky as he uncovers a truth that has gone undetected in his family for generations. An unknown monster with the power to take a …
I was graciously asked to speak at the West Virginia EDS Support group meeting. Because the support group meeting helped in the evening and I knew that we wouldn’t get out until a bit later, and because night driving is hard for many reasons, I decided to stay overnight. Staying overnight meant that I either …
She did it!! She did it! Allysa Seely won gold!! Allysa Seely won gold at the Rio 2016 Paralympics in the Women’s Triathlon Race! Here’s the EDS Wellness’ FB live feed video when we were watching Allysa Seely’s race results live on the Internet – https://www.facebook.com/EDSWellness/videos/1184195198310596/ Picture of Allysa’s finish reposted from Donna DeWick (of …
Allysa Seely wins Olympic Gold at the Rio 2016 Paralympics in the Women's Triathlon Race Read More »
YTT Weekend – Session 5: Yoga Therapy and Physiology 2 (1 hr) Trauma-informed practice
“Let’s talk about sex baby, let’s talk about you and me. Let’s talk about all the good things and the bad things that may be…..” Let’s also talk about how you can be allergic to semen – The Human Seminal Protein Allergy (HSPA) and how it relates to Mast Cell Activation Syndrome (MCAS) and Ehlers-Danlos Syndrome …
