Month: October 2016

Migraines, Ehlers-Danlos syndrome (EDS), Mast Cell Activation Syndrome (MCAS), Birth Control Pills, and Light Sensitivity 

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. I’ve suffered from chronic headaches my whole life — including migraines. My first …

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My #Just5Minutes Parting Gift

While walking on the treadmill last night, I felt the top of my hand get tighter and tighter. I also felt a hot stinging-like pain. I finally stopped walking (I wasn’t walking super fast either), tried to open and close my hand, but it hurt a lot more than I was expecting. I hadn’t actually …

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#Just5Minutes – 20 mins cycling at home and the other side of needing meds to help you focus 

Sometimes you just aren’t feeling like it. Other times there’s so much going on that you have to choose sleep or to exercise. Most of this week, I opted to get sleep because how much it affects my brain cognition, my ability to drive and to get through a day of non-stop appointments, meetings, conference …

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Upcoming Events and Conferences! 

A few exciting updates:  1. The EDS Wellness HelpLine is live! You can schedule 15min phone appointments and also send emails to helpline@edswellness.org Direct link to HelpLine appointment scheduling – http://edswellness.org/index.php/make-an-appointment/  Link to post shared on EDS Wellness – http://edswellness.org/index.php/2016/10/16/eds-wellness-helpline-live-download-eds-wellness-app-make-appointment-register-classes-seminars-conferences/ 2. EDS Wellness has an App! Link to download the EDS Wellness App by Healcode …

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#EDSFitTip – Standing leg exercises for Hypermobility and Dysautonomia or POTS

#Just5Minutes – even in the OR! Calf raises are a great way to build strength in your feet, ankles, and calves. They also help keep blood from pooling in your legs, because when your muscles contract, they help pump your blood around your body (i.e. backup from your legs). One of the exercises that are …

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The Patient's Playbook – A Handbook to Navigating the US Healthcare System

“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “   At first, I was a bit skeptical. I wondered if the …

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Autonomic testing before my business meeting at 3pm

Days like today are why I’m grateful that the life I live and the work I do overlap. Gratitude.  Link to the autonaumic nervous system test (Ansar Testing) that I had done – http://www.tlcdiagnostics.com/patients/tests-and-procedures/ansar-testing What is autonomic dysregulation? http://www.mitoaction.org/guide/autonomic-dysregulation You can also visit www.dysautonomiainternational.org to learn more. 

EDS Wellness' HelpLine is Live and Open for Appointments and Emails!

Download the EDS Wellness App today! Who is EDS Wellness? EDS Wellness is a 501(c)(3) nonprofit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), connective tissue diseases, and related comorbidities.   1. The EDS Wellness HelpLine is live! You can schedule 15-minute phone …

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