Month: March 2017

Living with MCAS – "It's nice to meet you too." 

Saw a new MCAS doc today. Other than my main docs, I do not have a local doc who understands MCAS and issues associated with sensitivities to meds, etc. I’m not one to doctor shop and don’t have time to anyway, so I’ve just dealt on my own – barely. However, things have gotten worse, …

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#Just5Minutes – Lots of people workout at 6am – who knew? 

And what else can you do when you sleep like this? I met my friend at Zengo Cycle and I’m pretty sure she left shocked – per usual. However, class this morning reminded me of why I started going to Zengo in the first place – just about 5 years ago? ‘CLIMBING OUT OF THE …

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Living with EDS and MCAS

When you are the founder of a 501(c)(3) nonprofit and your focus is on serving those with Ehlers-Danlos syndromes, Hypermobility Spectrum Disorders, and related conditions, this is how you roll to a new doc apt. And again tomorrow too … I just want the hot spots on my thighs, the millions of pins and needles that …

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Wednesday is a big day! The 2017 EDS Diagnostic Criteria will be Published!

Wednesday, March 15th, 2017 is the day that the highly anticipated newly updated EDS diagnostic criteria will be released. The Ehlers-Danlos Society is holding a webinar in the morning at 9:30 am; however, it’s reached capacity. I will be listening in along with everyone else on the webinar. I was also graciously asked to help …

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#Just5Minutes – Zengo Cycle Class for my 3rd Workout of the Day 

Barre3 & Yoga classes this AM, and then Power Hour at Zengo Cycle with Shannon Ryan = how to procrastinate when you have so much to do, are beyond behind with work, and can’t see straight (literally and figuratively).  Working out 3x in one day was the lesser of two evils and less painful to …

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