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40 Years Old in 4 Months – Day 1
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Heat Therapy for the Treatment of Chronic Pain – Avacen Product Review
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#WorkFlow – The Dynamic Workstation, Sitting on the Floor and Managing Chronic Pain
40 Years in 4 Months Started Today – Holding Myself Accountable Even on Vacation
40 Years in 4 Months Started Today – Holding Myself Accountable Even on Vacation
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HypermobileYogi

51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)

2 Comments / Our Stories of Strength - Living with Hypermobility/EDS / By

Horraay! I cannot explain how excited I am to finally be able to share this awesome project with everyone! For EDS Awareness month we will be giving you a sneak peek each day from our upcoming e-book ’51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)’ – coming soon for EDS Awareness Month!
What first started out as a joint blog post about parenting and having kids with EDS, turned into a 6 month-long project that Sarah Wells (from My Stripy Life) and I have been working on off and on, waiting for the right time to finish and release it. As we continued to work on it, we kept finding more and more to add, and even more information and resources that we wanted to make sure were included in our post – which then turned our joint blog post into a full resource e-book.
The real, no holds barred advice that we wish we knew and we hadn’t had to figure out for ourselves, the stuff that the medical books don’t always tell you!
Stay tuned for more top tips each day and information about how to get a copy of “51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)’ delivered straight to your inbox!
Cheers!
– Sarah & Kendra

What is EDS?

Leave a Comment / Hypermobility Disorders/EDS/HSD / By

Ehlers-Danlos syndrome (EDS) is a group of heritable connective tissue disorders that are caused by various genetic defects in the collagen protein used to make our connective tissues. These disorders can cause a wide variety of complications throughout all body systems – Ehlers-Danlos syndrome is very much a multi-systemic disease.

Yoga and The Hypermobile Yogi – Managing Chronic Pain and Stabilizing Joints with Ehlers-Danlos syndrome (EDS)

Leave a Comment / Joint Hypermobility, The Hypermobile Yogi - Yoga for Hypermobiilty Syndromes/EDS / By

“Yoga is dangerous for EDS.” “I was told not to do yoga.” “Yoga will make you end up in a wheelchair.”  I’m sure that you’ve heard all these phrases before, and many people feel that that all three are absolute truths. While we all are entitled to our opinions, the fact is there is no …

Yoga and The Hypermobile Yogi – Managing Chronic Pain and Stabilizing Joints with Ehlers-Danlos syndrome (EDS) Read More »