Long before I knew that I had EDS, I figured out how crucial exercise was in the management of my chronic fatigue, physical strength & stability and overall well-being. At the time that I was diagnosed with EDS, I had already been working out consistently for over 10 years (since age 11yo), so imagine my …
"Exercise is Medicine for Ehlers-Danlos" – Webinar Summary Read More »
While I’ve never been in a wheelchair or bedridden, I’ve been darn close. However, I made a pact to myself as a kid to live my life differently than my Gram (AKA – Grandma with the pills) and my mom because they were pretty much bedridden my whole life. My parents separated when I was …
When living with EDS, You have to Think Positive, Believe & Just Keep Moving Read More »
Say what?? That’s right, “Vaginal Weightlifting” to help a variety of issues women may experience “down there,” including Pelvic Floor Instability. Awesome mental image – right? As someone who has long suffered with various issues “down there,” this article immediately peaked my interest. And because I am in the process of putting together an article …
Much buzz has been going around about the connection of Ehlers-Danlos Syndrome to a variety of other common ailments, including EDS and Stomach Pain. So many of us suffer from what has been diagnosed as IBS, reflux, Gastroparesis and a variety of other GI issues that go from our mouths down to our rectum. Yes, …
EDS and Stomach Pain: "Why being double-jointed can be a pain in the gut." Read More »
My hope is that my website becomes so much more than just a virtual record of my daily thoughts for the world to read (and that’s assmuing the “world” will have interest in and will want to read what I have to say) and is instead, viewed as a resource for anyone seeking specific information on the topics that can be found here and/or who is looking for place to read something fun, uplifting and motivating.
What is the “Just 5 Minutes” Rule? “Just 5 minutes” first started as my own “rule” when I didn’t want to workout (or clean the house, etc.); however, it has become a “rule” that other people identify with and is also one that helps provide the motivation needed to start moving in some way. The …
The 2nd Annual #EDSRideForACause is an active way to raise much needed funds for EDNF while simultaneously raising awareness for Ehlers-Danlos Syndrome.
