Our SOS Media, LLC releases debut anthology in the Our Stories of Strength™

Our SOS Media, LLC releases debut anthology in the Our Stories of Strength™ series featuring over 50 stories from people living with Ehlers-Danlos Syndrome in conjunction with Ehlers-Danlos Syndrome awareness month.
Ehlers-Danlos Syndrome (EDS) is classified as a rare disorder affecting 1:5000 people. Based upon recent research, the prevalence of EDS exceeds this number and could be as high as 1:100 to 1:200 people (Collins, 2015; Nielsen, 2013). Ehlers-Danlos Syndrome is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result.
Mysti Reutlinger and Kendra Neilsen Myles both live with Ehlers-Danlos Syndrome and associated comorbid conditions, which sparked the anthology inception and led to the business formation with core values of giving back to non-profit organizations, creating jobs for people living with invisible and chronic illnesses, and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength™ anthology series. Our SOS Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community.
Included in the anthology are stories of adversity, misdiagnosis, heartbreak, and devastation turned to strength, determination, and perseverance. Each story submitted is reflective upon common issues faced to those living with the invisible illness and has been noted within the medical community as providing “doctors the strength to find solutions.” (Pradeep Chopra, MD)
Learn more about Our Stories of Strength™ by clicking here.  You can also contact Kendra Neilsen Myles ( for more information about stories from contributors near your community and how you can further awareness, education, and funding for studies.
To read PR Release via PR WEb, click here.
To order the digital version of Our Stories of Strength – Living with Ehlers-Danlos Syndrome, click here.

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